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The Amyotrophic Lateral Sclerosis Association (ALSA):
National Headquarters: (818) 340-7500
Patient hotline (7:30 AM to 4:00 pm Pacific Time):
(800) 782-4747
National Multiple Sclerosis Society (NMSS):
National Headquarters: (800) 870-2500 ((800) FIGHT MS)
Indianapolis Chapter: (317) 870-2500
Muscular Dystrophy Association (MDA):
National Headquarters: (520) 529-2000
Patient information line
8:30 a.m. to 5:00 p.m. Mountain Time:
(800) 572-1717
National Organization for Rare Disorders (NORD):
(203) 746-6518 or
(800) 999-NORD (6673)
ALS C.A.R.E. Project Clinical Assessment Research & Education:
(888) ALS-HOPE
National Respite Locator Service:
(800) 773-5433
Well Spouse Foundation:
(212) 644-1241 or (800) 838-0879
Family Caregiver Alliance:
(415) 434-3388
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National Family Caregivers Association:
(301) 942-6430
Foundation for Hospice and Homecare:
(202) 547-6586
National Hospice Organization (NHO):
General: (703) 243-5900
Hospice referral and information only: (800) 658-8898
National Association for Home Care (NAHC):
(202) 547-7424
National Rehabilitation Information Center (NARIC):
General (800) 346-2742 or (301) 588-9284
ABLEDATA database access:
(301) 589-3563 or (TDD*) (800) 346-2742
*TDD (Telecommunication device for the deaf)
National Council on the Aging, INC (NCOA):
(202) 479-1200 or (202) 479-6674 (TT)
National Association of Area Agencies on the Aging:
Eldercare Locator: (800) 677-1116
National Institute of Neurological Disorders and Stroke (NINDS):
(301) 496-5751 or (800) 352-9424
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